Draft Statement on Consumer and Community Involvement in Health and Medical Research

Privacy Collection Notice

The content of your submission will be used solely by the National Health and Medical Research Council (NHMRC) to consider your comments for the purpose of review of the Statement on Consumer and Community Involvement in Health and Medical Research (2016).

The personal information that you include in your submission is being collected so that the NHMRC can communicate with you about your submission, if appropriate. By providing this information you are acknowledging that your information will be handled in accordance with the Privacy Act 1988 (Cth) and stored on an online service hosted in secure facilities in Australia, in alignment with the Australian Government Protective Security Policy Framework. NHMRC will not disclose your information to any third party without your consent. Further information, including how to access the personal information collected by us, complain about NHMRC's handling of your personal information, or how to apply for it to be corrected, can be found in the NHMRC Privacy Policy.

I have read the security warning/disclaimer in the Privacy Collection Notice and accept the risks and conditions outlined. (Required)

What is your name?

Note: This question is optional. You can provide a submission anonymously.

Name

What is your email address?

If you enter your email address you will automatically receive an acknowledgement email when you make your submission.

Note: This question is optional. Your response to this question will not be published.

However, if you choose not to provide an email address you will not be able to save and return later to complete your submission. Additionally, if you choose not to provide an email address you will not receive a copy of your submission.

Have you, or has someone from your organisation attended a roundtable for the draft Statement?

The Kids Research Institute Australia is hosting Australia-wide workshops beginning July 2025 to collect responses to the draft Statement in an open discussion forum.

To view the roundtable schedule and register your interest please visit The Kids Research Institute Australia website.

(Required) Yes No No, but I have submitted an EoI

If you selected "yes" or "no, but I have submitted an EoI", please select the roundtables you attended or have submitted an EoI to attend from the list below.

Please select all that apply:

Australian Capital Territory

Tues 12 Aug, Chifley Community Meeting Room, Canberra

New South Wales

Fri 8 Aug, 2:00pm – 4:00pm, Rydges Sydney Central, Surry Hills, Sydney Fri 8 Aug, 5:00pm – 7:00pm, Rydges Sydney Central, Surry Hills, Sydney Wed 13 Aug, International Hotel Wagga Wagga, Wagga Wagga

Northern Territory

Wed 13 Aug, Charles Darwin University, Casuarina

Queensland

Wed 30 July, Toowoomba City Library, Toowoomba Thurs 7 Aug, Translational Research Institute Woolloongabba, Brisbane Sat 6 Sept, University of Queensland Rural Clinical School, Rockhampton

South Australia

Wed 6 Aug, Flinders University, Adelaide Wed 3 Sept, The Kids Research Institute Australia, Adelaide

Tasmania

Sat 26 July, Phillip Smith Centre, Glebe Sat 09 Aug, Cradle Coast Campus, Burnie

Victoria

Thurs 17 July, Victorian Comprehensive Cancer Centre, Melbourne Wed 23 July, Neighbourhood Collective Bendigo, Bendigo

Western Australia

Tues 19 Aug, Health Consumers Council, Mount Lawley Sat 23 Aug, Health Consumers Council, Mount Lawley Wed 27 Aug, University of Notre Dame, Broome

Online - National

Tues 5 Aug, Online session (Zoom) Tues 12 Aug, Online session (Zoom) Tues 19 Aug, Online session (Zoom) Thurs 28 Aug, Online session (Zoom) Wed 3 Sept, Online session (Zoom) Fri 5 Sept, Online session (Zoom)

Are you providing a submission to this survey as an individual or on behalf of an organisation?

(Required) Individual On behalf of an organisation

Draft Statement on Consumer and Community Involvement in Health and Medical Research

Introduction