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Consultation on draft report to the NHMRC CEO for ‘Myalgic Encephalomyelitis / Chronic Fatigue Syndrome’ submission

ID: 
95
Personal Details
First Name: 
Angela
Last Name: 
Bazely
Specific Questions
Comments: 
People with ME/CFS who have severe symptoms are not well enough to go to a doctor. If a patient presents with severe symptoms a doctor realises there is something wrong and will order tests, but if the patient attends with only minor symptoms because they have been physically able to get there, can be brushed off.
Comments: 
The Graded Exercise Therapy program is dangerous for patients who have ME/CFS as it aggravates their symptoms. Outdated guidelines should be thrown out. Its better to give no help than the wrong help. Its a matter of urgency that Australia can put together new guidelines for Doctors and to update these as more research is done.
Comments: How could the recommendations be improved?: 
I would recommend the Canadian Consensus Criteria document is made available to Australian GP's
Comments: How could the recommendations be improved?: 
Research into ME/CFS is very important and consultation with the ME/CFS community should be at the top of the list for this.
Comments: How could the recommendations be improved?: 
Acknowledgement that ME/CFS is a medical disease. Doctors can be so off putting if the patient does not feel believed.

Page reviewed: 23 September, 2019