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Consultation on draft report to the NHMRC CEO for ‘Myalgic Encephalomyelitis / Chronic Fatigue Syndrome’ submission

ID: 
74
Personal Details
First Name: 
Michelle
Last Name: 
Schneider
This submission reflects the views of
Please add further information: 
Friend of ME/CFS patient
Specific Questions
Comments: 
ME/CFS patients face clinicians using old clinical guidelines that actually cause harm to ME/CFS patients and misguides the clinicians. Up to date clinical guidelines should be based on recent biomedical research findings.
Comments: 
Australia should be increasing education of clinicians in the ME/CFS field.
Comments: How could the recommendations be improved?: 
GET/CBT must be removed from clinical guidelines as a mandoratory treatment as soon as possible.
Comments: How could the recommendations be improved?: 
Australia needs to provide funding for ME/CFS research.
Comments: How could the recommendations be improved?: 
Australia should use the Canadian Consensus Criteria for all ME/CFS research.

Page reviewed: 23 September, 2019