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Draft Statement on Consumer Involvement in Health and Medical Research submission

This submission reflects the views of
Organisation Name: 
Queensland Department of Health
Please identify the best term to describe the Organisation: 
Government department – State / Territory
Personal Details
Q1. The aim of revising the Statement is to improve language and accessibility. Are there further improvements that should be considered?: 

No comment

Q2. The draft revised Statement contains five definitions: Community, Consumer, Consumer Representative, Involvement and Stakeholders (refer page 4). Are the definitions satisfactory? Are additional definitions required? : 

Comments: Suggested edits in bold and underlined. No additional categories are required.

Community — a group of people sharing a common interest (e.g. cultural, social, political, health, economic interests) but not necessarily a particular geographic association. Within this definition, it is important to recognise that different types of communities are likely to have different approaches to involvement in research. Agree. There may be many different communities in one geographic area.

Involvement – consumers, consumer organisations, community members, research participants, researchers and research institutions working in active partnerships to shape decisions about research priorities, policies and practices.

Stakeholders - An individual or group from within or outside research organisations with a key interest in research. This might include members of professional bodies, government agencies or funding bodies, philanthropists as well as consumers and community members. Stakeholders can provide support or expertise and may influence decisions about the research and its findings.

Q3. The draft revised Statement outlines the Key Elements that underpin effective involvement and Levels of Involvement (refer page 5). You are invited to comment on the identified Key Elements and Levels of Involvement.: 

No comment

Q4. The draft revised Statement includes information about how the Statement should be put into practice (refer page 5). You are invited to comment on this section, including whether additional information should be added. : 

Could add : Utilise popular and available social media options


Q5. NHMRC is considering placing Appendix 4: Useful Resources on our website so that stakeholders can access examples of consumer and community involvement in health and medical research. Please tell us about exemplars that should be included.: 

No comment

Page reviewed: 5 January, 2015