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Draft Statement on Consumer Involvement in Health and Medical Research submission

ID: 
15
This submission reflects the views of
Organisation Name: 
Western Australian Country Health Service (WACHS)
Please identify the best term to describe the Organisation: 
Health service
Personal Details
Questions
Q1. The aim of revising the Statement is to improve language and accessibility. Are there further improvements that should be considered?: 

Yes, we believe the language could be improved to assist accessibility for those with low literacy skills, especially as this is a document intended for professionals and consumers.  Suggest reviewing the document in terms of plain English and readability.  There are many readability formulas available on the web (e.g. http://www.readabilityformulas.com/). In particular, the section “The Statement and Consumers & Community members” on Page7,includes words such as intrinsic, beneficiaries, honoraria, integral, adhering, parameters, and should be revised.

Q2. The draft revised Statement contains five definitions: Community, Consumer, Consumer Representative, Involvement and Stakeholders (refer page 4). Are the definitions satisfactory? Are additional definitions required? : 

WACHS supports the five definitions, however suggests that a definition/s of “Health & Medical Research” might be useful.

Q3. The draft revised Statement outlines the Key Elements that underpin effective involvement and Levels of Involvement (refer page 5). You are invited to comment on the identified Key Elements and Levels of Involvement.: 

WACHS support the Key Elements and Levels of Involvement contained in Draft Statement.

Q4. The draft revised Statement includes information about how the Statement should be put into practice (refer page 5). You are invited to comment on this section, including whether additional information should be added. : 

No comments

Q5. NHMRC is considering placing Appendix 4: Useful Resources on our website so that stakeholders can access examples of consumer and community involvement in health and medical research. Please tell us about exemplars that should be included.: 

No comments

Page reviewed: 5 January, 2015